Summer is a unique time in everyone’s life – a time to relax, make friends, and have fun. It’s also a time of adventure and trying new opportunities. For children and people with seizures it may be a time filled with uncertainty and worry. Unfortunately, these worries and fears may keep children from participating in summer activities or camps, just when they need these programs the most.
Epilepsy foundation had recently organised a summer camp for all the epileptic patients on Sunday, May 28 at Sanjay Gandhi National Park. This camp was attended by 275 epilepsy patient’s and care givers.
“Camps can provide benefits to both adult people and children with seizures. It helps to improve a child’s ability to cope with and manage their seizures. For example camps can help build one’s self-confidence, develop peer support and increase independence,” said Dr Nirmal Surya, founder chairmen and the trustee of Epilepsy Foundation.
The picnic started with pick up at 7 am from Surya Neuro Centre and the bus reached the national park. The kids enjoyed the magic tricks in the natural environment surrounded by lush greenery and wild habitat. Along with this they enthusiastically participated in a drawing competition. Children who scored well in their academics were honoured with prizes by MP Gopal Shetty.
Father of 11 year old Richa Kumar, resident of Vasai said, “My daughter was suffering from seizures a year back. With proper medication she is fine now. But we always worry to send her alone in school picnic’s. So this was a good experience for her. She enjoyed magic show and drawing competition.”
The patients were then taken to Gandhi Memorial spot where they all were entertained by playing housie and other games.
Ashutosh Jaiswal, a 21-year-old Elphinstone resident also shared his experience
“I really feel relax and fresh. My father was with me as a care giver. I am suffering from seizures since 3 years. Now there is lot of improvement in my health condition. This small trip has encouraged me to fulfil my dreams,” said Jaiswal.
Epilepsy is a chronic non-communicable disorder of the brain that affects people of all ages. Approximately 11.2 million people suffer from epilepsy in India.
Talking on misconception among the people about epilepsy Dr Surya said, “due to lack of knowledge people consider epilepsy as a spell or a magic and end up with wrong treatment like using onion or shoe which ruins the life of the patient. People should seek medical help and for this more awareness need to be spread”.
“Epilepsy is treatable. Epilepsy patients can lead a normal life. Many people in our society continue to suffer because of misinformation about this disorder. It’s a chronic disorder of the brain that affects people worldwide and awareness about early diagnosis is important to reduce the misconceptions among people,” he added.
Epilepsy Foundation India is a non-profitable charitable organization which works for the welfare of the people suffering with epilepsy.