WCNR 2018: ‘India needs to gear up for treating adults with cerebral palsy’

Speaking on the fourth day of the 10th World Congress, Dr Ashok Johari, a paediatric orthopaedic surgeon said that India needs to prepare itself for treating children affected with cerebral palsy (CP) who are entering adulthood. As they  advance in age, they become prone to more disorders

WCNR 2018: ‘India needs to gear up itself for treating adults with cerebral palsy’

“Kids who suffer from cerebral palsy are treated by paediatricians or orthopaedic surgeons. When they enter into their adulthood the doctors who treat adults are not trained to handle these patients. It is this transition phase that our country needs to prepare for. As the child becomes elder there is no one who can take care of them. We need to create efficient services for this population,” said Dr Ashok Johari .

He added, “Treatment in early childhood period can help minimise the disorder but it cannot eliminate the problem. Once their age advances they become prone to many disorders like spinal cord related problems, back pain related problems and fractures. They suffer from many neurological problems, which then makes passing urine difficult for them, their hand and leg becomes weak. Also, the proportion of some cancers like brain cancer is higher in these patients. It is necessary that doctors are prepared to handle these patients with cerebral palsy who are elderly.”

When asked about its preventive aspect, he said, “With neo-natal care improving in the country there is some amount of checking in cerebral palsy. Fitness and regular exercise helps. Also, the government is ensuring early detection of cerebral palsy through schemes like Rashtriya Bal Swasthya Karyakram (RBSK). Things are improving”

He also mentioned, “Also, there is need to present success stories which will motivate people suffering from cerebral palsy. There are many inspirational stories which will motivate others suffering from the condition. Additionally, there is need to have some team work, where doctors from different disciplines can have a dialogue which can then help in treating elderly patients suffering from cerebral palsy.”