Nayra is just a one-year-old child who is suffering from a rare liver disease called Budd Chiari Syndrome. Nayra’s parents Vidita and Anil Parmar are doing their best to provide her the best treatment available.
According to the doctors, Nayra might need a liver transplant but she is too young to sustain the surgery.
For the time being her condition is stable and in order to safely operate upon her, it is necessary to buy her more time by continuing the treatment.
Apart from Nayra’s fragile health condition, there is something which is proving to be a great cause of concern for Nayra’s parents. Her family’s livelihood is dependent on their tailoring business. They are struggling financially to continue Nayra’s treatment.
Nayra is currently admitted at Jaslok hospital and an interventional procedure has been performed on her. In order to continue further treatment, the couple are planning to sell their home in Mahim.
“We want Nayra to have the best treatment but how can we do that without money? The latest interventional procedure has cost around 6 lakh rupees. We don’t have any other option but to sell our home in order to continue her treatment,” said Anil, Nayra’s father.
While speaking about Nayra’s condition, Dr Shaji Marar, Consultant vascular and neuro-interventional radiologist at Jaslok Hospital and Research Centre said, “Nayra has a comlex problem of liver called Budd Chiari Syndrome. In this condition liver becomes congested. She might need a liver transplant but currently, she is too young and surgeons will not do a surgery now. That is why, we have to buy her time through treatment till the time she is ready for the surgery.”
Nayra’s mother Vidita is by her side, day and night in the hospital.
“She wants me around all the time. Her father has to go to work. I just hope that she gets better. That’s my only wish,” said Vidita.
What is Budd Chiari Syndrome?
It is a rare liver disease and is rarer in children
It is caused by clotting in the veins, which carry blood out of the liver
Clotting prevents blood from flowing out of the liver
This can cause mild to severe liver damage